They told me “Emma has spinal muscular atrophy”. Emma was just one month old. I thought “why, what have I done?” The world was falling apart. The sentence I said to the professor “Save my little girl“. And he answered me: “We will fight together“. That I will never forget. We started the treatment on 10 August 2018, and today, when Emma sits next to me on the sofa and falls down and then stands up again, I cry with joy, not with sadness.

“There is a medication, there is hope, we need to talk about it soon!”